On Thursday August 19, 2010 we found out that our precious little girl has an inoperable brain tumor in her brain stem. The overwhelming amount of love we have received from our families and friends is a testament to God's grace and provision in the darkest of hours. To help keep all our loved ones informed, as well as, process everything we are experiencing, we decided to create this blog. We adore our sweet Nina and we need a miracle!!!
Sunday, February 20, 2011
Restful Sleep
Nina got some much needed rest last night. The morphine patch plus the atavan really made a huge difference!!! She even requested to keep the oxygen mask on all night, sweet precious girl!!!
Although Nina rested it was almost impossible for Eileen and I, who were laying next to her, to rest! Her breathing is so labored. You can hear the fluid build up, the accumulation of spit. Periodically she would burst into a violent cough, clearing her airway!!! Each of these coughing spells would shoot through Eileen and I like a bolt of lightening. We are remaining calm but it still hard to not be in constantly petrified when your child is fighting to breathe and here is nothing you can do!!!
Twice in the last hour she has woken up and said she was hungry. I explained Vovo an Vava were on their way to make breakfast. She didn't protest but quietly went back to sleep. She knows when Vovo and Vava make breakfast it is good times!!!
As I publish this post, she is still comfortably sleeping.
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Sweet Beautiful Nina....
ReplyDeleteI am not there physically..but I am 100% in thought and prayer for you all today...every moment... May God hear our prayers!
She has changed me forever!
Love~Amy
She's gorgeous, Rosy. Lots of love and prayers.
ReplyDeleteDear Rosy,
ReplyDeleteI am praying for you, Todd, Teddy and Nina. My heart is breaking when I see the pain you are all going through. Your strength is inspiring, but I know the sorrow and pain are devastating. Please know I, like so many, are standing with you through this and asking for God's mercy, strength and comfort on you all.
Love, Pat
Rosy,
ReplyDeleteLike you, I could sit and watch my girls sleep for hours. Praying your family may have many more restful nights of sleep.
Thank you. Even in all you are experiencing, you have documented and shared so much. While you may think that it was for you, it has been such an example and testimony to others like me.
Stay strong, magnificent mommy! I have witnessed through this blog how your LOVE has been poured out over your sweet Nina, your terrific Teddy, your supportive spouse, and all those around you.
Your Nina is touching hearts around the world....including this one in Ohio.
2 Timothy 1:12 (the Message)
"I couldn't be more sure of my ground--the One I've trusted in can take care of what he's trusted me to do right to the end."
Praying....
I came over from little Rudy's blog. I will share my Prayers with Nina, request miracles and peace and comfort for all of you.
ReplyDeleteA rosary is being said in her honor.
{{{{{hugs}}}}
We are praying in Turlock. May God give you peace that HE knows what's happening and His timing is good. Not good in our scheme of things...but eternally He knows! God Bless you all.
ReplyDeleteColette Weber
All 100+ elementary kids at Monte Vista Chapel prayed for Nina, Teddy, Todd and Rosy as well as the whole family by name today, including grandparents, aunts, uncles and cousins. We prayed for strength, courage and peace for each one. Our Father is faithful and good and loves each one of you unfailingly. I continue to hold you up hourly.
ReplyDeleteLove you guys. Thinking of you always.
ReplyDeleteRosy,
ReplyDeleteI haven't posted any comments in a long time, but read your blog daily. I hope you can feel the strength of literally thousands of friends virtually standing by your side. Thoughts of peace, love, and comfort for your sweet "honey-girl".
Love,
Jim Ross
love you ninagirl. we are praying for you with all our hearts. rosy, you and your family have changed countless lives. nina will forever be a positive light, a reminder of how we should all live our lives--with fierce passion, a laughing heart, a courageous spirit.
ReplyDeleteWe have never met, but I wanted to let you know that I am thinking of and praying for your sweet baby girl and all of you. Rosy, I can tell from your posts that you are an absolutely incredible mother. An inspiration to us all to give the most to our children each day. Many prayers to bring you comfort and peace during this unimaginable time.
ReplyDelete