Monday, February 21, 2011

Day 188: Our Angel In Heaven

Monday February 21, 2011

Yesterday we celebrated Nina's birthday, surrounded by our family and friends. When Nina woke up at 11am, her face beamed. Eileen and I had decorated the entire house a la Sponge Bob. There were streamers, balloons, wall decorations galore. She opened her eyes and looked at me (I was atop the ladder) and said, "Oh Mama, thank you so much!! It's beautiful!!" I jumped to her side and kissed her sweet mouth. She asked me to help her sit up. Then she pulled me in for the biggest smooch ever! It was perfection, covered in love!!! Then she said, "Mama aren't you so proud of me for waking up in a great mood and being happy? Do I get all of my stars?" I giggled with delight as I kissed her mouth again and told her she got all the stars in the world.

Nina had the most beautiful birthday party ever! She was surrounded by every one who loved her dearly!! When we sang Happy Birthday to Nina it was the most sacred moment. Nina lay on her living room bed, surrounded by 40 people who loved and cherished her. She was in perfect Nina form. Hollered that we were too loud when we were singing so we softened our voices. She beamed when she blew out the candles! She even tried to smack the cake. Best of all, she demanded the biggest slice of cake ever!!!!!!

In the afternoon her breathing became very labored and difficult. We gave her more medicine to try to calm her down and help her rest. Before her breathing became even worse, she demanded and took a bite of her cake. Eventually we got panicked enough that we called Dan Brennan to come over. He helped us suction all the extra secretions she had and showed us how to lay her down in a way that would help keep her airway optimally opened.

After Dan left, Todd and I each lay beside Nina. We cuddled with her and all three of us fell asleep. About an hour later I woke up. Teddy asked that I sleep with him so I did. All night long, Todd and I kept vigil. Although her breathing was labored, Nina slept throughout the night peacefully!! I checked on her at 8:30 and she was breathing. Todd was asleep on the couch. I check on her at 9:10 and she was breathing. I kissed her and went into her bedroom to work on the blog. At 9:30 Todd raced in and said that she wasn't breathing. I raced to her side and started CPR. I don't know why. I just felt I like needed to do something. I breathed into her precious mouth about a dozen times. She took several breaths then I could no longer hear her heart beat. I called Todd over and told him we needed to hold her. I caressed her face over and over again, kissing every inch of her face and told her how much mama and dada loved her, how everyone loved her, how she was the greatest gift from heaven, our angel. Todd and I cried, he kissed her and told her also how much we loved her. I kissed her lips and told her our hearts belonged to her and that we would never ever stop loving her and that we would miss her terribly but someday, I promised, we would see her again in Heaven!!!

Todd and I then texted everyone that she had stopped breathing. Around 10am, Dan arrived and confirmed that her heart had stopped.

Our sweet angel was in Heaven!!!!!!

Nina was our angel on Earth and she is now and forever our Angel in Heaven!!!!

We loved you from the moment you we knew you existed, we loved you even more the first moments we held you, and we love you the most now and forever!!!!


  1. I am praying for all of you Rosy. Nina was a warrior, she won this horrible battle. May her new angel wings bring her to the Gates of Heaven, where she is no longer suffering.

    I pray for God to hold your hearts in the coming days, weeks, months, years.

    May God bless you and keep you.

    Rest In Peace, sweet, sweet Nina.

  2. My prayers are with you. I just went through this with my year old on January 25h.

  3. Honey I am so sorry!!! Love and prayers to you all. Nina and your family has drastrically changed my life.

  4. There was probably no better day than today for your sweet angel to leave the earthly world. She was surrounded with so much love as you celebrated her much looked forward to Spongebob birthday with SO many of her closest friends and family. It sounds like she was peaceful as she went, which is so very wonderful to hear.

    Keep all of your sweet memories with her close to your heart always. I, along with so many others, will continue to pray for you, your husband, and dear Teddy as you heal from this journey.

    May your hearts be overfilled with joy as you think of Nina, who is no longer suffering.

  5. Prayers for you and your family..I am so incredibly sorry for your loss..((hugs))

  6. I have been following your blog since December and immediately fell in love with Nina! Nina reminds me of myself in so many ways. I have been praying for you and your family and will continue to do so in your journey. I am saddened but glad she is one of God's special angel in heaven now and free from pain. I too have lost a closed love one due to cancer. Let Nina be the driving force in your family to strive for the best! Nina is an amazing, sweet girl and so blessed to have a loving family!

    Rest in Peace Nina! Blessings, Corinne

  7. i have been following your blog for awhile now. I have started from the first post, and read every one. tears are streaming down my face as I read this post. my heart breaks for your loss...your sweet angel has impacted so many lives in such a profound way. Your strength, love, hope, and honesty, have been an inspiration to me. My prayers continue for you, todd, and teddy. i wish there were more words to describe my condolences, and how amazing you are. Nina and teddy are so incredibly blessed to have you as their mother.

  8. Your loss is great. I will keep praying for your family. Cling to Jesus!

  9. I am so saddened by this news but am continuing to pray that you and your family will be healed and will find comfort in God's grace. Please know that I am always thinking of you and am here if there is anything I can do.

  10. I am heartbroken for your loss, but overjoyed that Nina is with our Father in Heaven - in the most perfect place, feeling no pain, and the utmost LOVE. Thank you for sharing your and Nina's story with all of us the entire way. May God continue to bless your family, and knit you even closer.

  11. Because of YOU and because of your writing, Nina has changed lives. Her life has changed others and you have been the tool that allowed that to happen. Anyone who has met Nina knew her strength, personality and sassiness was without comparison. Now, people around the world know and have prayed for her and your family and have been transformed by her courage. I love Nina and I am a better person because of her.
    All my love Fredeen family.

  12. Todd, Rosy, Teddy and family--

    Words are inadequate. One hungers for just the thing to say that will put this in some kind of perspective, but the best one can offer is that YOU ARE NOT ALONE. So many surround you and love you.

    Nina was such a beautiful girl and all of us who have been following marvel at all of the love, care and courage in your family. I am so grateful that Nina was on the receiving end of so much passion and care.

    I was awake at about 4am and got up to sit by the fire felt led to pray for you all. We'll continue to do so. Praying for peace and comfort for you all.

    Rolf, Trish and the Geyling friends and family

  13. Rosy,
    As many people have mentioned. It is because of you and your writing and sharing your experiences and Nina's life with have impacted so many in ways you will most likely never know. Nina has taught me to be a better person, parent, appreciate the moment, enjoy my meals, laugh, etc. My thoughts are with you all.

  14. When I received the email from Erica saying that Nina had passed, it took my breath away. I have been following your blog from the start and have marveled at your extreme care in sharing your journey with so many of us. Your family is now part of mine and your sorrow is ours too. Rosy, please keep us posted on how you and your precious Todd and Teddy are doing. My prayers are with you and your family.

    "In on of the stars I shall be living
    In one of them I shall be laughing
    and so it will be as if all the stars were laughing when you look at the sky at night"


  15. Rosy, Todd and Teddy, I am so sorry for your loss. Nina has changed my life forever! I have followed your blog from the first day you posted it. My heart has ached thru each step of this journey.
    May you find peace and be filled with love knowing your sweet angel is in heaven, and is no longer suffering.
    I will continue to pray for your family, and for Teddy. Much love, Tiffany

  16. I have been reading your blog since August and been praying for you along this journey. Last night I couldn't fall asleep and the Lord prompted me to pray... I prayed for all of you for an extended time last night and for sweet Nina whom I have come to adore even though I have never met her. Rosy, your courage and hope in the midst of this hard time is a tribute to your faith in our God. I will be forever changed by your strength...
    Please know I will continue to pray in the months to come.
    On a lighter note, my family and I will be eating Panda Express tonight in honor of your sweet girl.
    May God give you peace and grace as never before.
    Much Love,

  17. We have never met, but I have followed your blog with constant hope in my heart for Nina's healing. I am so sorry to read the news of her passing just now. What an extraordinary, beautiful, brave, smart little girl, and so loved and treasured by so many friends and family. The world is poorer that she is gone but at the same time richer that she has been in it, touching so many.

    And what an astounding mother you are. When I've read your updates, I have been awed by your efforts to create joy for your entire family. I am a mom to a little boy and I would consider myself a great success if my relationship with my son grows to be like yours and Teddy's, and if my son grows up to be as steadfast and brave and empathetic as your son.

    Since Nina's diagnosis, you have created so many wonderful moments for her and your family to share. Thank you for sharing them with us.

    So many thoughts and prayers for you and your family.

  18. You don't know me but I feel like I know you and your family, and your precious Nina. I have prayed for her and sat at my keyboard worshipping for her.
    I have loved your honesty and realness and cry with you. Not like you, but with you.
    All our love and tears,
    Jeannine and the Hoyte family.

  19. We kept praying and praying for a miracle - and I know now that Nina herself was the miracle we wanted. She has changed the lives of so many. I will continue to pray for Teddy (another beautiful miracle!!!) and for you and your husband. Just know that you are all miracles, and I'm blessed to have heard your story.

    I am so, truly, indescribably heartbroken for you all - but seek solace in knowing that you guys have changed so many lives, including my own. So much love xoxox.

  20. Sweet Rosy and family...we are bathing you in prayer. We love you and know that you will find lasting comfort in God's promises that He will never leave us or forsake us. I am certain that God has used, and is continuing to use these horrific circumstances to change many life is one of them. You have modeled the mother of self-sacrifice and uncondtional love that I long to be for my children. We are blessed to know you and share in this journey with you.Hugging you from Santa Maria and will see you very soon-until then praying ceaselessly. Love, The Curti family

  21. Nina is forever in my heart. I can't wait to hug you Rosy. I love you!

  22. My 14 year old brother Peter passed a year and 5 days ago and I know that he welcomed her to Heaven with a smile on his face. I do not know you, but all of my love is being sent to you right now. Our angels are in Heaven looking out for us now. Also, today's saint is Peter Damian, just another sign that my brother is watching over Nina.

  23. Rosy, Todd, Teddy and family I have been reading this since August. Your mother and father in law loved my husband and I since Jr. high. My heart is breaking for you all I can say nothing that will help other than I will continue to pray for all the family and wish I could be up there to hug you all. You all have changed my live.
    Love Rick and Joanne Hale

  24. Words can't express my sadness for you and your family Rosy. You have fought this awful battle with great dignity, courage and love. And now your beautiful Nina is safe in the arms of Jesus. And you are too Rosy - he's not going to let you go even when your world is collapsing around you, he won't let you go. Oh what a joyous day it will be when you get to meet him face to face and are reunited with your precious honey girl.
    Much love and prayers,
    Lisa xxx

  25. Dear Rosy... I have held you close in thought and prayer all day...I got an email from Susan shortly after Nina's passing this morning. I am grateful for the abundance of love she had around her yesterday and this morning. I am greatful that she was able to have a celebration of her! (Little Miss Queen of all Queens!) And showered with joy and love for her birthday. I am grateful that she was in the comfort of her home and with you and Todd holding her tight. That in itself is a blessing. I am so very very sorry love for Nina and your family will continue in prayer forever.

    Your precious Nina was and is a beautiful angel... Heaven has gained the most precious, most beautiful, strong willed, smart, funny and spunky angles ever! Her sassy style will keep all the other angels on their toes!

    I will never forget her spirit and her will. She has changed my life completely.

    Thinking of all of you and praying that God and Nina looks over You, Todd and Teddy...and that through them you gain the strength to move through each passing moment.

    Love and Hugs always,

  26. Oh Rosy. Tears are streaming down my face. Your sweet little girl is in perfect peace and waiting for you! I am praying for strength and peace for the days ahead. Your story is such a testimony of love!!

  27. Words are never adequate at these times so I'll just say I'm saddened to hear the news even though we all knew this day would probably come. I feel truly honored to have met Nina personally. She will always be in my heart, as will her beautiful family.
    With love,
    Jim Ross

  28. Rosy, Todd, and Teddy...I'm holding you guys close in my heart and knowing that Nina is safe with God in heaven tonight. Praying that comfort finds you. I LOVE YOU!!

  29. Teddy, Rosy, and Todd. Our prayers are with all of you. Nina will make the most beautiful angel.

  30. I'm so sorry for your loss. Nina is now a little angel free of illness and pain. Our family will continue to pray for your family. If you ever need someone to talk to or vent to you can contact me. I have been where you are. We lost our beautiful 2 year old son to cancer 3 years ago. You are in my thoughts and in my heart. Thank you for sharing your story with all of us. Love, Erika Zamora

  31. Oh my goodness. I am at a loss for words. I literally check on here about 5 times a day to hear what the little rascal was up to that day. Thank you so much for opening you heart and your lives to people who you only know by the love that you receive from them...even those across the country. Nina was put on this earth for a reason and she did what she was supossed to do. She showed us life....she showed us through you what a great mother is....and she showed us love. Thank you Nina...we will always love you.


  32. Dear Freeden Family,

    I have been following your journey for several months now. I am so sorry for your loss and will continue to pray for you daily.

    It is so evident that Nina's short life was not in vain. Nina has touched more hearts in her six short years here on earth than most people do in sixty. She lived life to the fullest and I admire her for that. I admire her passion and vibrancy.

    She was truly a unique gift.

    Thank you for sharing your journey and your sorrow and your honest with the world.

    praying with you,

  33. Rosy, Todd and Teddy, I am so sad to know of Ninas passing. Heaven has one more darling angel. Nina was a warrior princess and an absolute inspiration. Her legacy will remain forever in so many peoples hearts. May she rest in peace and forever be watching over you.

  34. Rosy...I have been following your blog for several months, and like others have fallen in love with your sweet Nina. My heart breaks for you.

    Your faith, your wit, your love for your children, your strength in the face of such have been an inspiration to me, and to so many. I cannot tell you how many times God has called you and Nina and your family to mind in prayer.

    I will continue to pray for you daily, and I thank you for opening your heart and sharing Nina's story with so many. You will never know how many lives have been touched by hers!

    -Steph T.

  35. Thinking of you Rosy. I am saddened to hear such news, but as you say, she is in heaven in good hands. Much love and prayers for you and your family. -Fong

  36. Rosy,

    I am a complete stranger. One of my university friends posted a link to your blog on FB and I decided to read it.

    I am cannot imagine all that you and your family have been through; I can only feel my own heart shattered by the courage of your family and Nina's true grit.

    For whatever it is worth, I wanted to say that your blog was inspiring, humbling, and exemplifies the best of what it means to be human. Thank you for sharing your lives with the public in this way--for your angel has already touched my life.

    God bless and all the best. May Nina rest in peace.

    Grant A.

  37. There are no words to bring you more comfort than what has been said in the posts before this so I will just agree with all. I will say that if this blog doesn't someday turn into a book that will inspire thousands, I would be shocked! Nina has touched SO many through your writing that I can't imagine it could possible end here! Nina will leave a legacy even in her few years here I am quite sure!

    Also, I will be wearing my "Nina" red, ruffle satin heels in Nina's honor. I think that would make her smile! You all are in my prayers!

  38. todd, rosy, & teddy... this tremendous story of courage, strength, hope, joy, hurt.... it will stay with me forever. i have not followed you for a very long time, but have been deeply impacted by your beautifully honest words (i agree with josette... this blog needs to become a book). your impact is so great. so huge. thank you for reminding each of us to treasure our children deeper. praying for you tonight... & will continue to do so. hugs.

  39. I've never met Nina but I love her so much. I've been following your blog since almost the beginning, and I've admired your incredible strength, as well as Nina's sweetness and spunk.

    She has had quite the impact on me. I found myself thinking of her surprisingly often in the last month or so. You'd write in your blog about something Nina had said or something she loved and I would then hear or see something in my own life that reminded me of her. I literally can't go to Panda Express now without thinking of her and smiling. :)

    I felt sick with grief as this weekend went on and I kept reading about her breathing problems. I thought about her last thing before falling asleep at night and first thing in the morning, always wondering how she was doing and hoping, PRAYING she was comfortable and as happy as possible. My heart was broken for her and for you, Todd, and Teddy as she suffered. The only thing that makes any of this bearable is knowing she is in the best place anyone could possibly ever be in, and with the most loving person anyone could ever be with! You just know Christ welcomed her with open arms and a huge smile - she's home! She's running and singing and laughing again! :)

    I will continue to pray for your family that you find comfort and strength through this and the rest of your lives. Thank you, and thank you Nina, for touching MY life.

  40. Every ounce of this blog is so beautiful written, just like the life she lived up until the very end. She is a courageous little girl who had taught me what bravery really looks like. And you, Todd, and Teddy are such an amazingly strong and loving family. My heart and prayers are with you all.

  41. Dear Freeden don't know me...I stumbled on your blog from the "Pray for Daisy" blog sometime ago. Since then I have been privileged to read your sweet entries about Nina...what an amazing little girl, a brave big brother and a graceful mom/dad. I was so saddened to read Nina's passing today but with your gracious words, I know she is in the most beautiful place right now with no more pain. I pray for the days ahead for your family...know that there are a lot of prayers being lifted for each of you and for your family as a whole. Thank you for letting me be a reader into the last beautiful days of Nina.

  42. It is impossible for me to begin to try and understand what you are all going through, but I know enough to know that nothing I can say will make anything any better. Please know that we are keeping you all in our thoughts and sending our love your way.

    The Strong Family

  43. Fredeen Family,

    I'm so sorry for you loss. Rosy, you are a wonderful mom, thank you so much for sharing your Nina with all of us, you are in my thoughts and prayers always, I will forever remember Nina. May the love of God be with you and your family.

    With love,
    Anna Marie B.

  44. Your love and strength are amazing. I pray that you will hold all of the beautiful memories close to your heart. I am so sad for your loss. May the our Lord bless you. I know you don't know me but I won't forget your journey with Nina anytime soon. Nina, you are free to soar and I pray that I will meet you someday in heaven. God bless you all. Sherry Martinho

  45. I have followed Nina and your family since day 11. May GOD bless you and give you strength to live on in her name.
    I am so sorry for your loss

  46. Nina is such an inspiration to me. She lived for a reason. She is a miracle. I have been forever changed through reading this blog and getting to know Nina and your family. Thank you for sharing your strength, love, pain, laughter, and tears. I have so much love in my heart for your family and I am so humbled to have the privilege of being lead to this blog and read your story.

    I wish your family peace in your time of mourning and I know you will take comfort in knowing that your beautiful beautiful honey girl will forever be shining down upon your lives.

    Nina has made me a better person; and Rosy, when I become a mother someday, I will strive to be the kind of mother you are to Nina and Teddy. They are so so lucky.

    Wishing you all the love in the world.

  47. Thank you for sharing your beautiful gift of Nina with all of us. I respect and appreciate your transparency, your honesty with others and with God, your struggle for answers, your willingness to allow God to give you the strength needed, and your faith through the storm. God will use your testimony and Nina to change lives for so many years to come. I am so thankful that even in the deepest darkest times when you could not understand God's ways, you just chose to trust Him. We have cried with you and your family and we also rejoiced when we saw how God ministered to you and brought joy through things that were said by Nina or Teddy, and the people that God brought your way. Just seeing how your loving family and friends surrounded you blessed those that never met you. Now with the fulfillment of God's promises, we look forward with you as we are united together with our Heavenly Father. May God cover you with grace, fill you up with His love, and bring miraculous healing and restoration to your family as only He can. Nina will be with us forever. With much love, Kim (Leslie's mom…...Leslie and Anders)

  48. I am so, so sorry for your loss. Upon reading your blog this evening about Nina's party never in my wildest dreams did I think that today would be the day. I know everything is in God's hands, he gave Nina her wish of a Sponge Bob Party before taking her home.
    My heart is broken for all of you and you all will be forever in our prayers.

  49. Here's more love and prayers from me, just another 'stranger' who fell in love with your daughter the moment the blog was shared last summer. She's been in many hearts and the only peace we all have is knowing that she is no longer suffering. Perhaps one day I can give hugs in person. But for now, once again: MORE prayers to you and your family!

  50. Rosy, I was laying in bed and something told me to check your blog before going to sleep. How my heart breaks for you, Todd, and Teddy. I have grown to love Ninas sweet spirit through your posts.
    Your family is precious. Know that we are praying for you all. And God bless your beautiful guardian angel.

  51. Dear Rosy, all my thoughts and prayers are with you and your family as we all suffer alongside you. I have never been more touched by the ups and downs of these last few months and I know that Nina affected more people and changed more lives in her short time than most others will ever do. Love you guys,

  52. Rosey, I'm just another "stranger" that has fallen in love with your beautiful Nia. I am praying for you and your family. My heart aches for you. May the Lord give you His abounding peace during this terrible time.

  53. I am so glad she had such fantastic party! She is up in heaven now. Praying for rest and healing for your family. God definitely had the right parents for this wonderful child. Thank you so much for sharing your little girl with us all.

  54. Rosy, Todd, and Teddy. I am so sorry for the loss of your precious Nina. She has touched so many lives and that is so evident in these comments that I have read tonight. I am sure she has and will continue to touch lives that you may never know about. I have been praying for ya'll and for Nina since September and have enjoyed reading about your honey girl and all the fun and crazy things she would do and say! I am so relieved to know that she was able to go from her mama and dada's arms into her Heavenly Fathers arms with no fear and no pain. I will continue to pray for you and your family and friends in the coming days, weeks, and months. Please keep us posted on how things are going and know that there are a lot of people lifting each of you up in prayer. Every time I see a pillow pet I think of Nina and will now enjoy going to Sephora to buy makeup more now when I think of the make-up queen! With love from the east coast, we love each of you and are lifting you up in prayer!


  55. Rosey, Todd and Teddy~ I am a stranger who has followed your blog for quite awhile. I have prayed for sweet Nina and your family every day. My heart breaks for you but knowing how strong your faith is makes me praise God. Nina is an angel and I can hear her laugh along with Jesus! May you continue to turn towards God during this time of sorrow..Please know many will continue to pray for your family

  56. May peace come to you. Praying for you wholeheartedly!

  57. Rosy (and Todd, Teddy): I'm also a stranger who started reading your blog after it was posted on Daisy's site. I have been praying and thinking about your family, and will continue to pray. Rosy you are an inspiration! I hope to have your determination and positivity when hard times come up.

    "Lead me by truth and teach me.
    For you are the God that saves me.
    All day long I put my hope in you!"

  58. Your story and Nina have changed my life. Such beautiful, happy, darling little girl. Her smile will continue to warm the hearts of many. I was the 'lemur' at the zoo the day of Nina's big party and I don't think I've ever had more of an amazing day. The happiness and laughter and hope that I felt from all of your friends and family was overwhelming. You are all very loved. Seeing Nina smile that day was one of the best things that has ever happened to me (in fact I based practically all of my college application essays on that day and you and your daughters story). She will be greatly missed but will continue to inspire everyone that was ever lucky enough to meet her. Such a lucky girl to have so many wonderful, caring and loving people in her life as she had. I'm praying for your family <3

  59. The LORD is close to the brokenhearted and saves those who are crushed in spirit. Psalm 34:18

    Rosy and family, my heart is breaking for you. Nina was such a precious blessing. It is a blessing that she went to heaven peacefully. She is now with Jesus...happy, whole, and healthy! I am praying for comfort for you and your family!

    Blessings in Christ,


  60. Dear Rosy,Todd and Teddy, I have read your blog everyday. I have laughed with you, felt love for you, and cried with you. You have left an impact on my life. Nina, sweet Nina has left me with such great emotion. I will continue to think of your family everyday and keep Nina in my heart.
    Denise Benko

  61. Oh Rosy I am so sorry. Words cannot describe the depth of this tragedy. You are the most amazing, courageous and devoted mother anyone could ever ask for and Nina was so blessed to have you. Sending you and your dear family my love and prayers.

    Ariella Parker

  62. I, too am a stranger who started reading your blog after Britt mentioned you on Daisy's blog. I have been daily following and praying for you.
    I am so sorry...still praying for you. Thank you for sharing Nina with us all. What a gift she is...I look forward to meeting her in heaven!

  63. Dear Rosy,
    You are truly an inspirational person--you were able to bring so much joy to Nina and Teddy. Nina's courage, strength, humor, and sass has touched so many lives and has definitely made an imprint on mine. She will never be forgotten and is laughing, playing, jumping, and pain-free in heaven. She is watching over all of you.
    Teddy is the most amazing little boy and you and Todd are incredible parents. I'm so glad that Nina got to do so many things since August and it sounds like everyone had a wonderful last day together. She is missed dearly, but is a beautiful angel (who will probably get to eat Panda till her heart's desire :) ) Like everyday and everyone, I will continue to pray for you and your family.

  64. I too am a stranger, been reading for several months now and I marvel at what an incredible family and support network you have. You have taken every step of this journey with sheer grace, and you are an inspiration.

    Although I never met Nina, I will pray for her soul and for your family.

    Thank you for sharing your story.


  65. I am so, so sorry for your loss! I myself lost my 15 month old daughter 7 months ago. It is simply horrible! Your blog shows the beautiful relationship that Nina, you, Todd and Teddy shared. I hope these beautiful memories can sustain you all in the difficult road ahead.
    You probably never heard of this group... I wish you did not have too. I loved them, they have being helping me a lot. There is probably a local chapter for when you fell like it.

  66. Dear Rosy, Todd, and Teddy,

    There are no words. Thank you for allowing us to share in your joy, your determination, and your suffering. Nina's life was short, but her impact is immeasurable. May you be comforted by knowing that your honey girl lives on in the lives of the thousands touched by her story.

    Peace be to her memory.
    Sandy Shove and family

  67. I know that nothing can truly reach the depth of pain your family is feeling. I am among the many who you have not met, but who have followed this blog faithfully. Tears streamed down my face as I read of her last breaths. My prayers will continue for your family (you, as parents, and Teddy) and all friends and family who loved her dearly. Her story has touched me deeply. May God show you Himself and His comforting arms, even during this time of pain beyond comprehension. May He guide you through the stages of grief in the coming months and years. I love that you are able to identify that He is big enough to deal with all that you have to dish out to Him, whether it is anger, fear, pain, abandonment. Never forget that.

    Someone else I know lost their 20 year old son/brother. One thing the mom said repeatedly is that she appreciated when people acknowledged what they missed/loved about her son. I'm not sure if it is something you are ready to hear yet or not (if not feel free to not read it if you are not ready) or if it is helpful to you, but I thought I'd share some of the things I'll miss about her even though I've never met her in person. I know they are not nearly as many as those who have known her in person, but I will certainly miss hearing about it in your writing.

    Her delight in the littlest things. Her love for her brother. Her ability to find the perfect gift--and delight in it. Her "off with your head" moments. Her ability to make all of you smile. Her feisty spirit. Her determination. Her love of Molly. Her love of being girly.

    I am quite aware this is a small list in comparison to the depth of who she was, but I hope it brings some small amount of comfort...even if it's not right now.

    Again, I am praying for everyone grieving this precious girl. And for strength for you as parents to do what no parent should ever have to do...

  68. Dear Rosie, Todd & Teddie,
    We are so sorry to hear that Nina is an Angel now! We will pray for you, for Todd and dear Teddie.
    Lots of love,
    Marcel, Petra, Alex & Noud

  69. Fredeen Family,

    I am yet another stranger who came across your blog via Facebook. I have been following your blog from Turlock for several months now and have fallen in love and prayed for Nina everyday. Rosy, my heart aches for you as a mother. I am so sorry for your pain, but also grateful that Nina no longer feels any. Your entire family will remain in my prayers always.

  70. Dear Rosy, Todd, and Teddy,
    We are so sorry for your loss. Nina was very bright and precious girl, and she stayed brave up until her last day. Rosy, you are amazing Mom, and Nina was blessed to have you. Stay strong! Our thoughts and prayers are with you and your family.
    The Belkins.

  71. May you all find comfort, peace, and rest as your precious Nina is now filled with the greatest comfort, peace, and rest. May the Lord's strength carry you as you continue to live for your darling angel. Thank you for sharing your journey and allowing God to use you and your family to touch so many.

  72. For over 5 months you have touched my life through your words here on this blog. I have prayed for Nina and today, God answered our prayers in the way he felt fit.

    Today, Heaven is a much sweeter place.

    God bless you all - Rosy, Todd and Teddy. You have a special angel watching over you.

  73. I am so sorry for your loss. I can't imagine the pain...and can I just say...I am glad she slipped away peacefully. I had a fear in my heart about her struggling or something, but God simply reached down and drew her home. May he comfort you and give you peace.

  74. I'm so sorry! Please know that people all over the country are praying for you. You are an amazing mother.

  75. Dear Fredeen Family,
    Although I do not know your family I have heard stories and seen pictures of Nina from
    Ms. KC Berry. Those simply put a smile to my face. Hearing the stories and seeing pictures I could tell that Nina was special gift, who enriched many of the lives around her.
    I am so terribly sorry for your loss, but it seems she slipped away like a perfect angel would. My mother and I have been praying for her and now we will pray for you.
    God Bless Nina for all the wonderful things she was about and for the lives she touched.
    God bless your family and my he take away your pain with love and gentle hands.
    There are many out there are praying for you, and wish you peace
    All my love a friend of a friend
    Jackie Sortino

  76. I have been following your journey from NH, as a stranger, but am incredibly touched by Nina's story. Your writing, and this record of her fight, is a gift to her, to your family and to many, many others.

    I am glad Nina is at peace and I continue to hold her and your whole family in the light.

  77. I have gotten on here at least once a day to read about your family's journey. I was drawn to it by your ability to be so "real". I appreciate real people...thank you. I'm so sorry for your loss...Words cannot express how sorry. I'm lifting you up in prayer right now.

  78. I'm so sorry for the loss of your precious girl. I will hold my babies a little tighter tonight in honor of Nina and Teddy. Peace be with you and your family at this tragic time.

  79. What an incredible testimony of the ministry that has been Nina Fredeen! So many lives impacted by her life! I know everyone has a different view of what happens when we get to heaven and really it doesn't matter once we are there, but for my finite, limited mind I like to believe that God allows those who have gone before us to see the great joys in the lives of those who loved them most. I like to believe my mother-in-law watched Joe and I get married and saw the birth of her three grandchildren and I like to believe that Nina is sitting on Jesus knee listening to all these comments about how many lives she touched and how loved her family is!! Her contagious laugh is filling the air!

  80. Sending strength and prayers to your family today and always, Rosy. I am so sorry for the world's loss and that Heaven gained such a young angel. May Nina rest peacefully.

  81. I'm wishing you all peace as you say goodbye to Nina. Your story has touched me in many ways, but as a mom of newly 5 year old twins, it has helped me a better mom. More attentive, more able to live in the moment, fewer times saying 'not now, I'm busy'. My heart breaks. You are a beautiful mother and a true inspiration. Blessings.

  82. Rosy,
    There are no words to describe my sadness for you all. You are a pillar of strength and I admire all you've done to stand strong for your family. God bless you all as you say goodbye to sweet Nina and know that you are in my thoughts, prayers, and tears this morning.
    Love, your old friend Shelly (Wallace)

  83. Rosy,
    What beautiful words you have used to describe your sweet girl and her restful peace in heaven. Sending prayers and best wishes to your family. Good to know you all have a wonderful Nina angel looking over you.

  84. Freeden Family,
    Your gift of sharing Nina's story with the world has forever touched my life. Peace among everyone as you say goodbye to Nina here on earth, but look to the skies to see her smiling face watching over you! Your strength, passion, and love are admirable!

  85. I'm so sorry for the loss of your precious honey-girl. I, too have been following your blog since it was posted on Daisy's and have been praying for you every day since. I have been in awe of your ability to choose joy for your family in the midst of such pain and I know your honesty and transparency in this space has had a profound influence on so many lives - mine included. I pray that God brings you the comfort and peace that only He can. And again, thank you for allowing us to see the amazing woman and mother you are and for giving us a glimpse into what heaven's love must look like.

  86. Dear Rosy, Todd & Teddy,
    I can't find the words... please know that your honey girl has touched our hearts deeply and that we will continue to pray for yours.
    In love and faith,
    The Frank Family

  87. Your story as touched so many lives and we appreciate you sharing your journey with us. My family prays for yours often and while we are heart-broken to learn of Nina's passing, we are so happy to hear she is no longer in pain and was welcomed into Jesus' loving arms. Your grace and strength are truly inspiring. We will continue to pray for strength and peace to be upon you and your family during this difficult time.

  88. Hi, my name is Pete. I was one of the folks who donated Disneyland tickets to your family. I am so sorry about your beautiful little girl. I saw the pictures from your trip to Disneyland, and it looks like you all had a great time. It makes me happy to know that I helped in making great memories for you and your family, but today I have to shed a tear. I send my heart to you. She is in a good place now.

  89. I am so sorry............Praying and trusting in God to fill you all with His great strength and peace during this unbelieveable grief. He will sustain you all....Keep your eyes fixed on Him and He will see you through this trying and devastating valley. So happy to know she is in the arms of her Heavenly Father, running, smiling, being silly, and in no pain.........
    Hold on....GREAT is His Faithfulness even in the storms and valley's.....His ways are not our ways..His thoughts are not our thoughts..He is in control.....His way is Perfect. He is our Refuge and Strength.....Rest in Him.

    Psalm 23:4 "Even though I walk through the valley of the shadow of death, I will fear no evil, for You are with me; Your rod and Your staff,they comfort me."

    Psalm 73:26
    "My flesh and my heart may fail,
    but God is the strength of my heart and my portion forever."

    "Be Still My Soul"
    He is here for the broken and life to the one who is undone.
    He is peace to the wounded and hope for the helpless one
    He is here, He is here

    Be still my soul, be still
    Be still my soul, be still
    Wait patiently upon the Lord
    Be still my soul, be still

    When the waves rise against me and the wind tries to draw me away
    I will stand on the mountain, safe in Your arms I will sing I will sing

    Be still my soul, be still
    Be still my soul, be still
    Wait patiently upon the Lord
    Be still my soul, be still

    Be still I know He is God
    He is here, He is here
    Be still I know He is God
    He is here, He is here

    So be still my soul, be still
    Be still my soul, be still
    Wait patiently upon the Lord
    Be still my soul, be still
    Wait patiently upon the Lord
    Be still my soul, be still

  90. You don't know us, but we know of you. Our entire family sends their love, thoughts and prayers to you and yours. Your Faith and strength is inspiring. Nina is indeed an Angel and will watch over your family in this time of healing.

    With Love,
    The Deakynes

  91. Dearest Fredeen family, my heart breaks for you all over the loss of your precious Nina. I want to thank-you for your strength, courage, and faith over the last 6 months and now. You are such a wonderful family and have touched more lives than you will ever know, mine included. God bless and keep you always. Much love from my family to yours.

    The Lenssen's

  92. Dear Rosy....
    words cannot express how heartbroken I am reading your words.
    I live in Italy and I've been praying for your angel since I started reading your blog, looking at your photos... You have such a beautiful family and you're so full of grace. I wish I could hug you and confort you. I'm with you with my spirit.

  93. Rosy
    I am so sorry, there are no words. My heart is broken.
    I am praying for the strength your family needs right now.
    Nina has changed our lives, what a sweet precious little angel.
    I hate this. I know I am supposed to say something comforting, but I don't know what those words could possibly be.

    Kelly (and Ryder)

  94. Todd, Rosy & Teddy,
    We are praying for your family in this time of incomprehensible loss. We know Nina is in Heaven sitting with Jesus and our heavenly father. Words can’t assuage the pain and sorrow that fills your lives right now, but just know that we continue to think of you and pray for your all.
    With Love, Nick & Trisha Leer

  95. I'm another "stranger" that stumbled on this blog through another one I follow.

    Maya Angelou wrote "there is no greater agony than bearing an untold story inside of you."

    Reading you blog has become part of my day, like an amazing book I can't put down, though I know this is all too real. As a mother of five, I've found your posts refreshingly honest, touching, laugh-out-loud hilarious, and yes, at moments, heart-wrenching.

    I can't imagine the pain of your loss. Nina is a beautiful, fiery spirit, one that will transcend this world and time itself. Rosy, so are you.

    Thank you for telling your story, Nina's story, Teddy's story. You've done it beautifully and I am changed forever because of you.

  96. Dear Rosy,

    I'm another stranger who's followed your blog and whose heart is breaking for you. Your sweet honey-girl Nina has touched my life and that of your family and everyone who read your blog. We will all remember her with love in our hearts. You handled the worst, most horrible situation any parent could be handled with humor and aplomb--you are a wonderful mom.

    Thinking of you,
    Heather Austin-Weir

  97. Rosy, Todd, & Teddy,
    we at Cambridge Drive Church continue to hold you all in our hearts and in our prayers.

  98. I too have read your blog since August. I was up in the mountains this past weekend and even without internet, I'd check your blog on my phone to see how sweet "honey girl" was doing. I'm so, so happy that she was able to celebrate her birthday in perfect Nina fashion with everyone around her. I had been praying that when Jesus decided to take her it would be peaceful and painless and I don't think it could have been more perfect with you and Todd holding her and kissing her face as she went to Heaven.

    I don't have any children yet but I when I do become a mom, I hope to be just like you. Your motherly love, wisdom, and honesty in the face of such horrible circumstances is an inspiration to future mamas everywhere. Thank you, thank you, thank you.

    Melissa from Colorado

  99. I am so sorry for your loss. I have read this blog on and off for a while and have prayed numerous times for your little girl, and have admired just how you are able to pour love out on your kids throughout this ordeal.

    I'm still young too, but like Melissa said, I hope to be just as great of a mom and inspiration as you are. Thank you for this blog.

    I am so glad she is free of suffering now, and able to be with God. He will lavish His love on her forever now!

    I will continue praying for you all. Much love,

  100. Dear Todd and Rosy,

    Our hearts are so heavy with your loss of beautiful Nina. We will continue to pray that your pain will lessen a little each day while you seek to comprehend the unknowable.

    With Love and Tenderness for you and your family,
    Janet, Randy, Brian and Lauren Rowse

  101. Praying for you. I know that you take peace in knowing she is in God's arms now. She was a true gift from Him, and He clearly has great plans for you all.

    Thank you for sharing your story and your lives with us all.

  102. i've been praying & losing sleep over a darling girl i've never even met. i hate that it had to end this way and that your family had to go through this! she has touched & changed so many people through this blog. what a life! what a joy! what a girl! there will be no one like her. her smile lit up the pages of this blog. she will be so missed. it was obvious she was SO LOVED by you all. i can't even begin to imagine your pain, but know that people are lifting you up, praying for you all around. may God be your everything in this time of sadness. i pray you feel his arms holding you extra tight & that the love & hope of heaven will embrace you day & night. thank you for sharing your story! thank you for allowing nina's story to change the world! xoxo

  103. Dear Todd and Rosie,
    You may remember me from years ago when I was staying with Mike and Pam. I remember meeting you, Rosie, and you were so kind to include me when I didn't know anyone at a family wedding. I never forgot that. I am so saddened to hear about your loss. I am praying that the God of all comfort will be your portion and you will know His love and care in the days that are to come.

  104. Rosy,

    I am another stranger who fell in love with your family after coming here through Daisy's blog.

    I have so much empathy for what your family has had to endure these past six months. Nina is truly a marvelous girl and I have learned SO much from her fight. "Mama aren't you so proud of me for waking up in a great mood and being happy?" This leaves me in complete awe. Nina is truly an angel.

    Rosy, I wanted to say that YOU are also my personal inspiration for the magnificent and courageous way you have taken care of Teddy and Nina. This blog is a real testimony to me, and it chronicles SIX months of love and attention and grace. There were so many moments of wonder in these six months that it will really make me rethink my attitude in life. I also LOVE the above picture of you, Todd, and Teddy just POURING over Nina. I think it captures your ability to remain strong for Nina SO WELL. Your face is tilted in an angle to match hers and you are looking to Nina with such a beautiful and comforting smile. Many commenters have said this already but you are a blessing to Nina, as is Todd and Teddy. It makes me cry just looking at it. I am so sorry your beloved daughter is gone and I hope you can find comfort in the fact that Nina was peaceful when she slipped away. We all have been praying so hard that Nina would experience neither unbearable pain nor sadness and terror at the thought of leaving the people that she loves, and I am so glad that she did not have to experience those things.

    Rosy please know that Nina has re-opened my heart to the need for basic research (and basic cancer research). I have been indecisive about whether I wanted to pursue basic or translational research, but just today my research mentor had a talk with me, encouraging me to become a young investigator and to continue in a basic research lab. When I go to my cancer biology class next week, I will be thinking about Nina. When I learn the details of disease mechanisms in the future, I will be thinking about Nina.

    Please keep sharing the story of your family. My heart is breaking for the pain Teddy must be in right now, and for Todd who must have been such a force of love to Nina in her last moments. For Sosie and Adelae. And yet I know that you will find the strength to ensheath them with love.

    praying for nina,

  105. Dear Rosie, Todd and Teddy,

    You don't know me but I have been reading your blog and praying for your family for months. My heart is heavy with your news. As a new, young Mother I can only imagine the pain and devastation of saying goodbye to your baby. Nina was a very special girl with such a kind and generous spirit. I have truly appreciated reading the honesty and rawness of your blog. You are remarkable parents and Nina will forever know the depth of your love. I pray for comfort and healing for your family, especially sweet Teddy. Your precious, little girl is now pain free in Heaven. She can run and play and breathe. I hope you find peace in knowing you will be together again someday! Thank you for sharing her story. She has forever touched my heart!
    With love,
    The Hammans Family

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  107. Rosy,
    I love you and your family so much. You, Nina, Todd and Teddy have been in our thoughts, prayers and hearts like no other. We will continue to be lifting you guys up as the next days turn to months and months to years. You are amazing and so is the way you have shared Nina's journey so openly, it has truly change myself and Nathan. We will never be the same because of it. I can not wait to see both of you smiling as she is again someday by your side as we all celebrate Jesus together.
    I love you, Regina

  108. oh rosy. nina's birthday party extended into the most heavenly of celebrations, as she stepped from this life into eternity - to her Jesus who loves her perfectly, knows her and calls her by name into his presence. i wonder what she is seeing, smelling, tasting and doing in heaven? oh, to imagine the joy, the bliss, the wonder as Jesus holds her close and dazzles her with the beauty of himself!

    and yet, in the midst of picturing that glorious hope and trying it on for size, we here on earth feel so much of the sorrow and hurt and pain. oh rosy i can't imagine the well of emotions your family is experiencing right now. i only feel just a glimpse of what you have experienced these last many months, but for this glimpse i am utterly grateful.

    i am humbled and convicted to the core as i have experienced this heart-pumping adventure of faith, courage, and relentless love through reading your full-of-life blog. your entire family has truly ministered to so many as you have let us enter into the darkest hours of your life. thank you for teaching me so much about how to live honestly, trust God in spite of ALL within and without, and how to receive and give so much love.

    for the days ahead, my prayer is that Jesus would be at the forefront of your minds, your hearts and your soul. that his presence would minister tangibly to you, todd and teddy, and all your family and friends. Jesus is the only one i know who absolutely understands and has taken on the sorrow that you feel, the emotional abandonment that you feel, and who has experienced the sting of death - a death he never deserved! he truly knows your pain.

    and yet Jesus has experienced victory. rock-solid, beyond-doubt, completely earth-shattering victory over death through his resurrection. and when we trust him, we too receive the sure hope of life he purchased for us. nina has the goal of our salvation now!! and oh, i already see that victory and hope in you and your family, rosy. written all over you all. i pray Jesus will be so near to you in this time. that he would be your rock, your strength, your shield, your reason for hope. He is our advocate. ALWAYS.

    with much love,

  109. There was and is so much purpose in Nina's short life on earth. I praise God that he alone can turn our nightmares into victories. Thank you for sharing your story with the world. Your faith has been such an encouragement to me. I can't wait to hang out with you and Nina in heaven!
    Your sister in Christ,

  110. Dear Family and friends of Nina, I have been following Daisy's blog on the site and somehow I managed to come to this site just today. I want to point out the best parts of your daughter that made me smile... how much she loved makeup, colored uggs, music, swimming, laughing, and the color pink!! I am so proud of you all for your strength and determination. To Nina's mother, I am so touched by you and your writing and videos. I truly think you should look into working with children as a career. You exude patience, love and understanding and can write so beautifully. Thank you for the laughs, the tears, the heartbreak, and most of all, the HOPE AND FAITH. If only everyone in this world knew just how temporary it truly is. I hope some day down the line, you can continue blogging about Teddy and your new adventures.

  111. I look forward to meeting your Angel in heaven. God bless all of you. Joann Saraceno

  112. crying and praying with you from Ohio. I cannot fathom your loss. We all admire your courage and honesty. God bless you and your sweet family.

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  114. I have been following your blog for the last few months.... I am so sorry your baby is gone. I will be keeping your family in my prayers! Lots of love to you!

  115. Like many others I have been following your blog of your sweet honey-girl from the beginning. Thank You for sharing your journey with us. Although I never met Ms. Nina I was able to laugh along with her many exploits and shopping adventures to the mall. I will never look at a Panda Express without thinking of her and smiling.
    Your family is a true testament to love. Pure and simple. Nina was so special and so lucky to have all the people who loved her celebrating their love of her (along with Sponge Bob).

    My thoughts are with you and your family.
    Amanda H

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  117. I too am a stranger, only in passing know your family through Monte Vista Chapel.

    I have read your blog for months, and prayed nightly that God would perform the miracle you so longed for. We all longed for. He had other plans and one day we will know that plan. I picture your precious Nina with her angel wings on, probably asking another if they are straight.
    I can't imagine the pain you are going through, and pray for strength for your family in the months to come.
    Your blog is a testimony to others in your love for your Father and your everlasting commitment to Him.
    I am just so sorry for your huge loss. It's funny how you cannot know another but feel so much for them.
    Thank you for sharing Nina with others.

    God Bless.

  118. I am so sad and sorry for your great loss. Rosy, you have modeled such love, courage, honesty, raw emotions, compassion and fierce authenticity in this journey and your sharing has touched many people. Your sweet angel Nina is so loved, and I imagine she is sending much love your way now and forever.

  119. Dearest Rosy, Todd, and Teddy,
    My heart aches for your earthly torment, and my soul rejoices for Nina's heavenly gain. I am yet another stranger who has laughed with you, loved with you, and now mourns with you. My words are inadequate, but my prayers are with you all. Thank you for sharing your honey girl with us. I pray that you continue using your gift of writing that God has bestowed upon you, and it helps you and others who are hurting to heal. I know Nina couldn't have been loved more, and she is very proud of you all.

  120. Rosy, Todd and Teddy,
    We are so sad that your angel is gone but comforted to know her last days were happy celebrating her birthday surrounded by her devoted and loving family and friends. What amazing parents you are to have shared Nina with us. You will continue to be in our thoughts, prayers and hearts.

    The Ingalls

  121. Dearest Rosy,

    I've read your blog from the beginning and I simply can't find the words to express how truly sorry I am. Thank you for sharing Nina with all of us. I will continue to pray for you and your precious family and friends.

    God bless you,

  122. What a blessing that you did not have to go to the hospital. You enjoyed her and showed your love for her with every strand of your body to the very last bit of her life here. And, she is still here, in spirit, being loved. I have lived by these words: "Love and be loved" and this is ultimately our happiness. You seem to be living your lives the same way. I am sending my love to Nina's spirit, Rosy, Todd, Teddy, and all your family and friends.
    Love, Cheryl (and Michael and family)

  123. I have been following your blog probably since October or November. Daily I check my emails, facebook and your blog. I have prayed & prayed for all of you. When I opened the blog tonight I said "oh no". I know I am a complete stranger to you but you have become like family to me... I weep and rejoice with you in the hope and assurance of Christ! Please know that you & your family have touched many lives! You have given me courage when I have lost it in situations in my own life. I realize there are no words that can really help... just please know that you are being carried to the very throne of heaven in prayers and love by many! Thank you for the courage to share your life! Please continue to share your journey with us!
    With so much love & gratitude for you & your precious angel!
    Patty Lee

  124. words, i fear, can't help the sadness you're family is going through. especially when coming from yet, another stranger. you have all been in my prayers, and now i pray you are filled with and surrounded by love and great strength. your story of love, and family is beautiful. and it is no wonder so many people have come together to pray for you.
    though tears flow, i smile because i know there is a new little angel out there for all of us.
    bless you. all of you.
    with much love,

  125. Rosy,
    Your family has become so dear to my heart. Though you don't know me, I love you all and will continue to pray for your peace, comfort, and strength. I hope these verses bring comfort to you.
    Love in Christ,

    You, Lord, are near to all who call upon you, to all who call upon you in truth (ps 145:18)

    But as for me, I will watch expectantly for the Lord; I will wait for the God of my salvation. My God will hear me. Do not rejoice over me, O my enemy. Though I fall I will rise. Though I dwell in the darkness, the Lord is a light for me. (Micah 7:7-8)

    Though the fig tree should not blossom, and there be no fruit on the vines, Though the yeild of the olive should fail, and the fields produce no food, Though the flock should be cut off from the fold, and there be no cattle in the stalls, Yet I will exult in the Lord. I will rejoice in the God of my Salvation. (Hab 3:17-18)

    May God wrap you all in His loving arms, and shower you with His peace, comfort, and grace.

  126. I am also a stranger who stumbled onto your blog and I want to express some of my love for you and your family. Thank you for sharing your and Nina's story, and thank you for sharing your love. Through Nina I am determined to study hard and ace my oncology class next semester (I am a 2nd year pharmacy student), possibly go into research or oncology pharmacy, and I am determined to love as much as possible every day.

    Jill in Stockton, CA

  127. Lovely Rosy,
    I am so...deeply sorry for the loss of your precious baby girl. Like many here, you don't know me, but I've been following your blog since about November, and I have thought of Nina every day since then. I still continue to think of her. I prayed so hard for her. I still continue to pray that she's finding the greatest happiness and peace imaginable in a place so much greater than here. She was...IS so precious. Such a brave ray of sunshine...smiling and laughing all the way until Jesus took her home. I can't even come close to imagine the pain you all are feeling. My heart has been breaking since Monday afternoon when I checked my phone to see how Nina was doing.

    I will continue to pray everyday that you and your family find peace and love during this impossible time.

    With so much love,
    Malia Chang
    Kent, WA

  128. Praying for your family! God bless you all.

  129. Praying for you and your precious family!

  130. Rosy,Todd and Teddy I'm Yvonne and Robert's sister in law from Portland. I never met Nina but feel I know her. To me...your blog has been an amazing love story. Love emanated from every posting and it was so inspirational. Please know that Nina lives on in the hearts and minds of many people. I'm so sorry for your immeasurable loss...
    Carol C

  131. From yet another stranger, my thoughts and prayers are with you. Your Honey-girl's legacy will live on in the hearts of many.

  132. Dear Todd, Rosy and Teddy,
    What a sweet sweet picture of all the people Nina loved on earth....surrounding her...and I am assuming singing "Happy Birthday"? The joy on all the faces and Nina SOOOOOOO happy...and the center of all that attention and LOVE is truly breathtaking! If one can laugh and cry at the same time I want to do so!!!

    Your courage and dependence on God throughout this whole experience is awesome! You will see Nina again! The Bible says so! God has promised--He will do it!

    Much prayer going out to you, now and for the future.

    Modesto, CA

  133. I will cherish the months I lived with your beautiful family forever. You're amazing Rosy, a true inspiration. Thinking of you all constantly and will see you very soon. Love you. xXx

  134. I learned of your beautiful daughter late September (through the DIPG group), and have been keeping her, and your family, in my prayers. I'm so sorry to read of her passing - but also so comforted in knowing how much love surrounded her throughout her life! I'm glad she had a beautiful birthday party, and that her joy was overflowing! I believe today is her actual birthday, and it has to be so difficult to not have her in your arms. I'm so sorry. I'm praying for your family, as you miss and love Nina so very much. Your posts are always so touching....I will continue to pray for you to be comforted and strengthened. Hold Teddy close and know that you are being thought of by so many people. Rest in peace, beautiful will always be loved and remembered.

    Kim Vaughn

  135. Rosy,
    I am so sorry for your family's loss.
    Thank you for sharing your life with everyone.
    Sending you tons of hugs from the east cost.
    Warm regards,
    Jackie Adelson
    Waltham, MA

  136. Another stranger who found your blog via a link (from Facebook)...Nina's beautiful, spunky spirit shone through your words every day. We could just see her giving you the stinkeye, planting a kiss on you...your words vividly painted the picture of that angel's life. I am a mother to four children, and your insistence on keeping the small things close, on getting after Sosie and Adelae when they were fighting...all of those things come into play for me when I tend to brush off those small things. I am a better mother for having read sweet Nina's story, and for that, I will ever be grateful. You, Todd, and Teddy will be in my prayers in the coming days, weeks, and months as you grieve for, miss, and remember Nina, always.

  137. Walk in the world for me
    Sing a happy melody
    And keep my memory not far away
    May you find that life will bring
    All the best of everything
    Take special care of you for me

    Author Unknown

    Thank you for sharing the gift of Nina.
    Niid I'-tse La'i

  138. Our family has followed your journey all along and we want to send our love and deepest condolences for your loss. We will keep your family in our prayers for some time to come.

    The Rhodes Family

  139. Rosy and Todd,

    I am terribly sorry for your loss and my deepest sympathy and prayers are with you and your family.

    Rest in peace Nina,
    Andrea (Nelson) Sauer, former tutor for the Agostinelli family

  140. Nina entered this world enveloped in your unconditional love, and left this world wrapped in it. She has been an inspiration to so many, as have all of you...may you find some measure of solace in knowing that her love will be with you always, and that you were the most amazing family God could have given her. My heart aches and tears stream down my face...there simply are no words. She will be forever remembered, and may her amazing spirit and zest for life envelop you now and always.

  141. I first started following your blog a few months ago.. I've thought about and prayed for Nina often.

    God bless your precious family in this difficult time. I pray that although you are going through so much pain right now, you never lose your faith that He WILL carry you through the darkest times. I know that no words can comfort you right now, but I hope that even in your darkest times, you can rejoice that Nina is with her Creator now.

    Rest in Peace sweet Nina.. God has a beautiful angel now.

    I will be praying for your family.

    Psalm 34:18
    The Lord is close to the brokenhearted and saves those who are crushed in spirit."

    so I said to the Lord,

    “You promised me Lord, that if I followed you, you would walk with me always. But I have noticed that during the most trying periods of my life there has only been one set of footprints in the sand. Why, when I needed you most, have you not been there for me?” The LORD replied, my precious, precious child, I Love you and I would never leave you! During your times of trial and suffering when you see only one set of footprints, it was then that I carried you."

  142. Rosy,
    You have been so strong to keep this blog up. My heart is broken as is everyone who has followed your life story. Nina's life has touched untold lives and so has yours. Your faith and trust is a testiment to what living our lives surrendered to God's will is like. He gives us strength for such a time as this. Nina is now running through fields of flowers laughing and free. We grieve for our loss and that is necessary but our final destination is to be where she is and I envy her right now. Oh what joy she is experiencing!! I will continue to lift up your family in prayer, espically Teddy. He is so young and his understanding is much more limited. I pray God gives him an exta dose of comfort and strength.
    Love and peace to you all,

  143. No words for your loss, just prayers of the presence of Jesus around you, your home, and within you all. Nina, you were a true warrior. Thank you Jesus for gracing this world with this precious little saint. Surround this family now as only You can. Hide them under the shadow of Your wings. Surround them with your love. Keep them in perfect peace.

  144. I've followed your journey after seeing Britt Merreck's post on Daisy's blog. I've prayed for your family daily, and will continue to do so. I am so sad to hear about Nina, and have been reading some of your early posts to remember how incredibly full of life she was. I particularly enjoyed your story about shopping for "new food". Thank you for sharing your little girl's life with us!

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  146. i've just read most of your posts, staying up throughout most of the night in bed reading from my phone. i laughed, sobbed, and felt at peace all in a nights read. this is heart wrenching and reading the words about your family and your little nina has made me feel like i knew her personally and i wish i had.

    you have a beautiful family and you are an angel because i know how many you are helping with nina's story. you are an inspiration to many just as nina is inspiring us to love harder and live in the present. what a gift she is to all of us who didn't really know her.

    you are a wonderful mama.

    i can't imagine the pain you and your family is going through but i'm praying for you and your family knowing that you will come through this one day in honoring nina's beautiful life.

  147. I just found your blog today, and have spent the day in tears, and on my knees, asking God to bring your family peace. So much love to you.

  148. what a gift to have those precious kisses!

    i have no other words. just tears and prayer.

  149. Your faith is so encouraging. I send my prayers, thoughts, and love to your entire family. Nina is with our Heavenly Father, and she is so blessed to have amazing family and friends like you all.

    With love,

  150. I have read this post so many times and every single time I send you so much love and energy. You are the strongest women and mother I have ever "met". You are a beautiful writer and have a soul that jumps off the page.
    My thoughts are with you often. You have impacted my life in ways I never know anyone I didn't know could.

    I truly hope you find some kind of peace and trust in God to comfort you.

    All my love!